Happy Easter to all. Hope you had a great day spent with your loved ones. We spent the day at Downtown Disney and it was a fabulous day.
It is technically winter, I mean it is February. I talk to my loved ones back in NY and they are buried under 2-3 feet of snow with no end in sight. I thought I would miss the brisk mornings, I thought I would miss the smell of fireplaces burning in the distance, I truly thought I would miss the snow. I can honestly say that nope I do not miss snow at all. Not one bit, not shoveling it, not driving in it, not waiting for it to melt. None of it.
So to my family back in NY I am sorry that your winter is awful, I am happy that I am not there enduring it with you.
Happy 2014! Wow is 2013 over already? I have so many things I want to do this year, so many things I want to accomplish. I am not going to make any resolutions. To resolve means to settle or to find a solution to or decide firmly on a course of action. I know that there are many things that I want to accomplish but I know that I have no idea or plan written in stone to do them. I am going to go through this year and go with the flow so to speak. I will do whatever I need to do or whatever feels natural. I am trying harder and harder as I get older to just go with my gut. I know that I definitely want to put myself out there more, try new things, make some new friends, but how I will go about all that is still unknown. So Happy New Year, let’s make 2014 a great year. I hope you enjoy following me through this Project 365.
New Year Day is great for resolutions but when it comes to sticking to a resolution, well let’s just say that is not an easy task for me. It would probably be a lot easier to just take the year day by day and to make small changes that will ultimately get me to where I want to be one year from now. I will not make any resolutions this year but if I had to describe in one word what I want 2014 to be it would be Effortless.
I am beginning something on my blog this year called the 365 project. What is it you ask? It is basically a project in self- discipline, for one year or 365 days, I will take a photo everyday of some aspect of my life and blog about it here. I also hope to make some sort of scrapbook along with it. I want to make it more about all the things I want to accomplish this year, all the things I love about my life, all the things I do and see. I am extremely excited to get started. So here is to a wonderful 2014, may it be effortless in living, enjoying, loving, doing and learning. Happy 2014!
I love to decorate for Christmas. Here are a few things I have done in my home to make it feel Christmasy!!!!
It’s Blogmas time!!!! What in the world is Blogmas you ask? It’s a combination of the word Blog and Christmas. I am going to blog everyday from now until Christmas day about all things Christmas. Today’s topic? Christmas music of course. No Christmas season is complete without listening to some Christmas tunes. My favorite Christmas albums are as follows.
1. I am love, love, loving Kelly Clarkson’s new Album Wrapped in Red. It’s Christmas music it’s Kelly Clarkson, what’s not to love.
2. Michael Buble Christmas- Love him, love his voice, did I mention I love this album?
3. Josh Groban’s Noel- LOVE IT!!!
4. Glee Christmas
These are just a few of my favorite albums. What are your favorites? I would love to hear, leave me a comment and let me know.
So it was Halloween, our first one in the south and I must say, you guys really know how to do Halloween. We had so much fun Trick or Treating with our new friends, it was definitely a blast and fun was had by all.
Two years ago they wheeled you away on a bed that was way to big for you. I kissed your forehead and promised you, promised myself that I would see you later. I watched you look back at us, I watched you look back as if to say, where are you going? Why aren’t you coming with me? I didn’t want to let you go, I didn’t want to let them take you. I wanted to grab you and run out of that hospital, but I knew I couldn’t, you needed to be there, they needed to save you. A week earlier your health started to fail, you were “failing to thrive” as the doctors put it, the surgery needed to be done as soon as possible. We were going to the cardiologist sometimes twice a week and to the pediatrician at least once a week, we pretty much lived in doctor’s offices. The holes in your heart wouldn’t repair on their own, so they needed to cut your tiny little chest, they needed to put you on a heart and lung machine, they needed to patch the holes in your heart.
That day was the longest day of our lives, I can vividly remember every moment of that day as if it was just yesterday. I remember handing you over to the doctors, I remember screaming inside, but I didn’t want you to see me upset so I smiled at you, kissed your forehead and broke down as I saw the doors shut with you on the other side. There was nothing I could do now, what if you were scared, what if you were crying, what if you needed me, there was nothing that I could do. You were laying in that cold operating room with all of those machines, you were probably cold, you were probably frightened and I couldn’t be there to hold you, I couldn’t be there to tell you that it was going to be okay, I couldn’t be there to wipe away your tears. Minutes felt like hours and hours felt like days, not knowing was agony, 8 hours of surgery, 8 hours you were gone from me, 8 hours I couldn’t help you, I couldn’t save you.
The doctor’s came out dressed in their scrubs, all I heard in the next few minutes was “She is doing good, the surgery went well, and you can see her in a few minutes.” I didn’t hear anything else, the explaination of the surgery is a blurr. I remember thanking God that they saved you, thanking the heavens and anyone else who was listening that you were going to be okay.
When we walked into your room, I was going to turn around and walk out because I thought we were in the wrong room, it was only when the nurse called you by your name that I realized it was you. You were so swollen and orange from the iodine, you had so many tubes and wires coming out of you, I couldn’t see my baby anymore. Oh how I just wanted to scoop you up into my arms and love you and snuggle you but I couldn’t, it would be too long before I was able to do that.
The next 8 days would be long and exhausting both emotionally and physically. Daddy and I never left your side. You were doing so well, until they gave you your first dose of morphine. Your little pink body and face started to turn blue right before my eyes, and you were gasping to take a breath, I heard you inhale then exhale then I didn’t hear anything else, you had stopped breathing. I have never been so scared in my life, Grandma and Grandpa had arrived just as this was happening, I think they aged 25 years before my eyes. They had to insert the breathing tube again. They saved you again, they got you breathing again. The beeps and sirens of all the machines in your room, I will never forget those sounds for as long as I live. They would beep when your heart rate would drop and doctors would come in to check and make sure you were okay.
I am grateful to all of your doctors and nurses for the wonderful treatment they gave you, they saved your life, they saved our lives, I can never repay them for such a wonderful gift. As the days went on the tubes and wires were removed one by one. Each and every day you got stronger and stronger. I will never forget the day they nurse told me I could hold you again, they had to tuck all your wires in and hand you to me. It was so wonderful to hold your warm body against mine again. I was scared you wouldn’t know me, I was scared you would hate me for leaving you that morning with strange men and women dressed in scrubs. But you knew me, and you didn’t hate me, you fell asleep in my arms that night, and I have never felt so content and happy in all of my life.
By the 8th day the doctors said you were ready to go home, your little body had endured so much, I was afraid to take you home. It was such a wonderful feeling walking through those hospital doors knowing we were on the other side, we were going home.
I cried the a lot that week, I cried more tears than I thought was possible. When we got home it was hard, I was afraid, afraid I would hurt you, afraid you were too fragile. But each and every day got easier and easier and we got through it all. You were a new baby, you had become the baby I believe you were born to be, you had strength, energy, you yelled, you cried. Before the sugery you couldn’t cry your body was too weak, so we had never heard you cry, not once.
You began physical therapy and speech therapy in November. Each and every day you have been proving to everyone just how truly wonderful and strong you are. You are eating better, you are sitting all by yourself, you are doing the things that some doctors said you may not do. It is going to take you longer than most babies and you may have to work a lot harder than other babies but that is okay with me. You take your time, you do things when you are good and ready. I am so glad that the surgery is behind us, and your cardiologist appointments have become yearly visits instead of monthly visits. We are thankful that we were able to get through it all even though at the time we had no idea how we would. We are thankful for our true miracle, our gift from God.
Being that the south is now our home we have been missing fall a lot. There are no changing leaves here, no crisp clean air, no smell of fireplaces burning in the air, no cozy sweaters, no cool weather. It just hot, really hot at least for October. We wake up everyday hoping this will be the day we need to put on a sweater. So while it is sweat worthy outside I figure I can at least pretend that it is fall inside. Inside it is cool and crisp, with the smells of apples in the air, the need for a sweater, the smell of pumpkin coffee brewing.
Well summer is officially over and we didn’t get to even half the things on our bucket list. My daughter has therapy 4 days a week so that kind of prevented us from venturing out too much. Now I feel terrible, that we didn’t get to do all of the things that I planned, all of the things we wanted to do together. I love to have both my kids at home with me and my heart is breaking that my son has to go back to school.
Therapy sessions will continue for another year for Little Miss and then she is turned over to the school system, uggghh. I get sick to my stomach when I even think about it. So summer, I regret we didn’t do enough but luckily the weather doesn’t change down here so we can probably still do summer like things well into fall on the weekends.